And Sometimes We Just Don’t Know How To Answer That Because We Don’t Really Know What Happened. One

And sometimes we just don’t know how to answer that because we don’t really know what happened. One day we were okay and over some period of time things just kept getting worse and we woke up one day and realized, “Fuck, is this what disability feels like?” And we still struggle to admit we’re disabled. Or maybe someone was born this way and nothing “happened.” Either way, we aren’t obligated to tell you anything. And that’s just how it is.

One thing abled people need to realize, is that when you ask a disabled person "what happened", not only are you inquiring about a person's medical history, which is personal information, but also you are potentially asking them to relive what might have been the most traumatic time of their life.

An accident that left them unable to walk again. An illness that wrecked their life. A natural or man made disaster that took their loved ones.

Your curiosity simply is not worth digging up someone else's pain.

More Posts from Lyliana1277 and Others

2 years ago

I recently had to do this and it was stressful af!

You think prepping for first dates or job interviews is hard? Try prepping for an appointment with a new primary/GP when you have a chronic illness.

-symptoms (when they started, how long they last, how frequent they are, new symptoms since seeing old doctors, pictures with dates and short explanations)

-tests done already, test results, tests that need to be done regularly

-conditions that have been screened for, conditions that need to be regularly screened for, secondary conditions due to primary condition(s), how different conditions are managed

-an elevator speech practiced so that you can cover everything important in a short amount of time (especially difficult if new doctor hasn’t heard of condition)


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2 years ago
WIP #2

WIP #2

No plumbing started yet because two of the guys on the crew got Covid. Maybe next week? I’m so ready to have a shower that works again.

The Mother of All Snowflakes WIP #1

image

Pattern by Mary Corbet of Needle ‘n Thread

Link

I’ve been itching to get back to cross stitching for a while now. I have one all planned out for a friend, but I can’t find my white aida cloth to start. At least, I think it’s big enough for what I need. Not working makes things challenging when needing to purchase supplies. The black aida I purchased earlier this year was just a bit to narrow for what I need, so I decided to repurpose it. To snowflakes, of course! Did a little Google search, found this free pattern and here I am. Also, black aida is a bitch to work on. it feels like a miniature litebrite. I’m a quarter done with it after starting on Friday, which is weird to think. It’s been good for keeping my hands and mind busy, especially with the wife having seizures off and on all day. She was supposed to have an ambulatory EEG this weekend, but our outlets in our 1950s house are too small to accommodate what the tech needed to plug the camera into. Now we get to schedule a 72 hour EEG at the hospital in the middle of respiratory disease hell season. Weeee!

In better news, our plumbing is getting replaced tomorrow. Or rather, the plumbing replacement process starts tomorrow. Jackhammering at 8 am! Who doesn’t love getting woken up to jackhammering right next to the bedroom? Although I just thought of something. Wife’s seizures have been sound triggered as well; this could get really messy.


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2 years ago

welp. i was THISCLOSE to posting an adolescent “i hate everything” post… and then i saw this.

2 years ago

hungry piggy

(via)

2 years ago

back when the spotify wrapped playlist of 2018 came out, i was confused to find the mission impossible theme song at the top of my list. until i remembered. halloween 2018. i had work and my job required me to walk around a lot. i basically just took laps through a building filled with people. for hours. so i got this idea. i dressed up as a secret agent, a low key and professional costume. but i added a twist. i put the mission impossible song on repeat, set it to the lowest setting possible and put my phone in my pocket. and so the entire day i walked around, slowly driving people insane bc they kept hearing the faint music of mission impossible but when they tried to find the source i was already gone. i paused it whenever i paused walking so no one would figure out it was me. they even asked me if i’d heard it. i acted confused. it took them hours to figure out what the hell was going on and knowing i caused such chaos still fuels me to this very day


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2 years ago

As a ND person, I hate having to take communications courses in college. It reaffirms that NT people are confusing AF.


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2 years ago

This is really helpful!

Autistic overload is like internet bandwidth.

If you're struggling to understand why you are good on some days and bad on others, one way to think of your brain is like internet access.

Some people have direct access, so any information incoming is fast, easy to process and unless they start being really silly and downloading 20 movies at once, not too much is going to interrupt their experience.

Autistic brains are more like public internet access. It's not that greatly connected in the first place, it can't handle large data packets, and if you're not careful you may get some unwanted information downloaded.

If you're accessing this when not much is happening, you may not get a bad experience. Not much is draining the limited bandwidth and processing times are faster.

The next day, however, you may get a completely different experience and even just connecting is impossible.

So, it's okay to sometimes switch off that access and just recover for a while.


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2 years ago

I wasn’t prepared to cry again so soon!

Your future self is hating you for the poor decisions you’re making today.


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2 years ago

@todaysbird

lyliana1277 - Randomness From Lyliana
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lyliana1277 - Randomness From Lyliana
Randomness From Lyliana

36F.AuDHD.INFP.Hufflepuff.Taurus.Mostly crafty, neurodivergent, astrology, and random things I enjoy.

256 posts

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